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What is Sickle Cell Anemia?
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"While we celebrate the gains realized over the past 100 years, the need for advancement remains. There is still no widely available cure and there is still only one drug with FDA approval for the treatment of adults with sickle cell disease."

Priscilla Hill-Ardoin, Founder


You can help by supporting our mission to Increase Awareness, Enhance Treatment, Promote Prevention, and Advance the Cure for persons with sickle cell anemia.


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"We are going after chest syndrome because this is the most lethal, after sudden death in infancy ... by far the most serious problem in sickle cell disease."



David G. Nathan, M.D.    

"The Aaron Ardoin Foundation Visiting Professorship on sickle cell disease will help to open the lines of communication within the medical community and keep sickle cell visible among researchers."


Michael DeBaun, M.D., M.P.H.


GRANT REQUESTS

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LIVING WITH SICKLE CELL ANEMIA

In the early 1970’s, 14-years-old was the average lifespan of a person with sickle cell disease. Thanks to the efforts of many scientists, researchers, and doctors, people with sickle cell anemia are living significantly longer and  more productive lives than ever before.  With a healthy diet and lifestyle, knowledge about factors that cause crises, and sufficient coping mechanisms, many sickle cell patients can reduce or prevent many of the complications of sickle cell disease.

 

Pain crisis or episodes remain one of the most common complications of sickle cell disease.  The severity and type of pain varies from person to person.  Other complications can include stroke, acute chest syndrome, and infection.   

 

Learn everything that you can about the disease to help you recognize early symptoms, seek early treatment, and cope with the pain.  Your physician may be able to recommend treatments to help you manage your condition and reduce your symptoms.  They may also be able to suggest vitamin supplements and help you assess your medications and treatment of other medical conditions.  Also, be aware of your environment, such as the weather and altitude, as well as your physical activity, as they can impact your symptoms.  Be sure to drink proper fluids and get plenty of sleep and rest.  Living with sickle cell can be stressful; consider contacting a local support group to help you deal with the stress of living with the disease.

 

 

   
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